Wellness Strategies

Patients with myelodysplastic syndromes (MDS) may face many challenges. The symptoms of MDS, such as fatigue, weakness, bleeding and infection, can limit a patient’s activities, cause emotional distress and lead to further complications.1,2,3

It is important that patients follow excellent wellness practices to help them minimize MDS symptoms and complications and improve their overall health.1

The Aplastic Anemia and MDS International Foundation recommends the following wellness strategies for MDS patients:

• All patients should avoid contact with toxic substances that can be ingested, inhaled, or absorbed through the skin.
• All patients should avoid medications, vitamins and herbs unless they have been approved and prescribed by their doctors.
• All patients should practice excellent oral care to minimize the risk of infection in the mouth and throat.
• All patients should report any symptoms to their doctors immediately to ensure proper action is taken.
• Anemic patients should avoid high altitudes and activities that cause chest pain, shortness of breath or an increased heart rate.
• Neutropenic patients should take prophylactic steps to avoid infection, including washing their hands diligently and avoiding crowds.
• Thrombocytopenic patients should avoid activities that could cause bruising or bleeding, and they should notify their doctors if they develop persistent pains or headaches.1

There are steps patients with MDS can take to be sure they’re achieving optimal emotional wellness. Effective therapy for emotional stress has been shown to be beneficial for MDS patients, and patients should be encouraged to seek therapy and support.2 Chronic illness counselors and support groups may help MDS patients and their families cope with the challenges of MDS. Additionally, antidepressants may help some patients cope with their disease.1

Visit the Treating Myelodysplastic Syndromes section for information on current treatment options and the latest developments in MDS treatment.